I don't know what happened...
I was healthy, super active, and was living life until I hit 27 years old. Since then everything has changed. I made a list of it all on the left side and it is listed from where things started and now. I am going to do my best to explain each problem and what is being done to handle it. You should know that none of these medical issues stops me, I still work hard, have fun, love and laugh everyday.
Migraines are hereditary...
I got my first real migraine in 7th grade math class, it was so scary I can still remember it. I told my teacher I had a headache and was crying Mr. Little (oddly he was 7'2 foot tall) told me I could go out in the hall and lay my head down. Migraines also come on from hormones, welcome to puberty lets make you think you are dying. I watched my mother and grandmother go through these headaches as well. They typically start behind my left eye and then move to my whole head. Any light, sound, or movement will make you vomit... yuck!
The space invader, Glioma Brain Tumor (it invaded the space between my brain and skull)
I am on my second brain tumor at this point. The first one was found in 2005 when I started fainting, having headaches, and having seizures. I was in Germany and married neither of which made this whole thing easier. I was medically flown to Walter Reed where they did all the testing and my first round of treatments. Later that year I was sent to Ft. Knox to have the brain surgery close to where my family was. (I met Jerry just before surgery and he stuck in there with me)
Talk about pain, I can't describe it. But after surgery they can't give you pain medication this is because should the brain swell or have problems they won't know if it's your brain or the medication. Possible brain problems you might start seeing things, not being about to speak, and become unresponsive. Medication... seeing things, can't answer questions, and knocked out. It's so similar that they can't give you pain medication so they can keep checking your mental status. I had to stay sitting up (even to sleep) for 3 months because they don't want swelling! When they did lay me down to do a CT scan it was horrible pain... I laid in there screaming.
Shake, Rattle, and Roll
Can someone help me find my inhaler?
"When I touch them, they feel like plastic"
I kind of lump Dysreflexia into 5 sections. 1st - sweating, dizziness, cold/hot extremes, and anxiety. 2nd - fear/panic, trimmers, headache, and nausea. 3rd - elevated heart rate and/or blood pressure, pain all over, fainting, sensitivity to light and sound. 4th - unable to control body function, vomiting, seizures, and feeling strong fear of impending death or doom. 5th - Heart attack, stroke, or even death.
Vision... Lost in space... the space that my optical nerve should be is constricted.
I'm such a dork, I'm watching Lost in Space while working on this. Say hello to oblivion! Danger Will Robinson Danger!
Hypercoagulation / Thrombophilia
Hypercoagulation or Thrombophilia is a blood disorder that I must take medication for, since the blood inside my body wants to coagulate abnormally. Normal coagulation occurs when your blood hits the air and turns into a semi-solid state so you don't bleed to much. My blood coagulates inside my body causing blood clots to form and become dangerous. Platelets are the cells that help with coagulation, my body makes way to many platelets so blood clots form inside of me. If a blood clot forms in your brain or passes through that is a stroke, if a blood clot forms or pass through your heart that is a heart attack, and if a blood clot forms are passes through your lungs that is called a PE Blood Clot or Pulmonary Embolism. I had a stroke and a PE in 2014, in 2017 I had a heart attack that damaged my anterior wall. I have also had blood clots for in my jugular and pericardium sac. Blood thinner don't always work.